Has there been a time in your life when you just wouldn't give up on something? Be it a relationship that wasn't working, a business idea that hasn't happened, a career that was physically killing you, or an unhealthy friendship? How do you know when to throw in the towel? Ive run myself into the ground and now I'm sick. They call it fibromyalgia, but it's like burning out. Why didn't I take a brake when I should have? Why did I drive myself so hard? What was I trying to prove? I truly can't answer these questions. If there anyone that's been where I'm at right now, I'd love to hear " what do I do now?" What did you do? How did you do it? & how did you know it was time to quit?
Love from Wenrella .
Showing posts with label Fibromyalgia. Show all posts
Showing posts with label Fibromyalgia. Show all posts
Sunday, September 18, 2016
Monday, November 11, 2013
Considering taking medication to treat Fibromyalgia?
Below is a list of common medications used to treat or reduce the symptoms of Fibromyalgia. Follow the links to read common uses, side effects, dosage details and read user reviews for the drugs listed below.
| DRUG NAME | INDICATION | TYPE | USER REVIEWS |
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Photos Make Chronic Pain Visible
If you live with chronic pain, you have vast quantities of company. The estimates range from a few million to one-quarter of Americans in long-lasting pain. But you might never know it. Pain is not visible. There’s no 12-step group for it. And if you’re hurting for long, you’re likely to retreat into isolation rather than reach out to others.
Enter the US Pain Foundation (US as of only this January; it began as the CT Pain Foundation), a volunteer-based group founded by Paul Gileno, a former chef who had to find a new calling after a broken spine left him in constant agony. It runs support groups; does advocacy work; and tomorrow, beginning at noonish, is holding a free-lunch session at the Tufts School of Dental Medicine that features The INvisible Project, which documents in photographs and text the lives of people with chronic pain. (One example is here.)
The project’s aim is to educate others about the lives of people with pain, Paul said: “I think the biggest perception for people who don’t have chronic pain all the time is that if they don’t see it, then it’s almost like they don’t believe it after a while. In the beginning, if you get injured, people say, ‘Are you okay?’ But after a while, that chronic pain stays and it’s a year later and people tend to say, ‘Okay, when are you going to get better?’ Well, I wish I could get better right now but my pain is still there. We’re saying, ‘It’s real and we want you to know this is real.’”
Also, Paul said, “We want to show other people with pain that their new normal isn’t much different than everybody else’s who suffers with chronic pain. We want to show them that it’s okay if you’re home one day and not feeling well, it’s okay if this is all that you can do. We want to show them that this is the new normal and they’re not alone.”
The people featured in the project have diagnoses ranging from arthritis to FIBROMYALGIA to lupus to obscure syndromes few have heard of, but they have two things in common: They’ve been chosen by fate to be physically tortured, and they soldier on.
Their stories tend to be Job-like; I can’t imagine what it’s like to live their lives, and to tell the truth, I don’t dare try. And that’s part of why people with chronic pain need to connect with each other, Paul Gileno said. “You’re understood on a deeper level that you need to be understood on. Because your family and friends aren’t going through it and can’t understand, and you need that understanding and support to move forward.”
“It’s so common for people to fall into such a deep state of depression and suffering,” he said. “And it becomes worse because when you’re depressed you move less, and your body’s tightening up,” worsening the pain. “You start to lose where that original pain was, because now you’re riddled with pain everywhere. Our goal is to try to catch people when they’re first diagnosed so we can walk them through it. Right now when people come to us” — some virtual hermits because of their pain — “it’s like they can’t take it anymore so they need to reach out. We want to catch people before they get to that point.”
I asked Paul what the culture was like in an organization where virtually everyone suffers from chronic pain. I could imagine two possibilities: Maybe more grumpiness than in most workplaces, but also more compassion.
Over time, he said, the foundation has found many people whose pain keeps them from working but who still have valuable job skills and find volunteering very fulfilling. The key is redundancy, he said: If a project employs, say, three or four attorneys where normally one might have been enough, then “if you’re having a bad day or bad moment or bad week, you don’t feel that pressure of ‘Oh my God, i have to get that work done.’ We all understand that — we make sure it’s not all on one person’s shoulders.”
Everyone understands other aspects of “the new normal” as well: “We are a little slower, our timelines are different, a lot of people are up at night so that’s when they’re doing a lot of work, because they can’t sleep at night.”
Since Paul founded it in 2006, the Pain Foundation has grown to 27,000 members, he said. There are other pain-oriented groups, including The American Pain Foundation and The American Pain Society, but he found when he was injured in 2003 that none seemed to fill his needs. “My life had changed and I started trying to meet other people whose lives changed because of pain, and I couldn’t find anybody. I started the foundation just looking for other people. and it snowballed from there.”
Saturday, August 31, 2013
Fibromyalgia & building a house
While I know we all go through trials & tribulations, and I know most ppl would love to be in my shoes, I just have to say.....I may look pretty darn good on the outside & have great words of wisdom, but inside of me is ugly and I cry every night in pain. I finally got a Dr. To do some injections on my sciatica, a chiropractor, a massage therapist, a physical therapist & now a psychologist. But truly I want to SCREAM! And start drinking, smoking, cussing, and pull my hair out! Buying a house may seem like a dream for most, but I don't recommend it if u r sick. I'm not looking for pity, I just needed to get tis off my chest.
Thursday, August 8, 2013
Stress can cause it to be worse
I'm in bed today! Yesterday was very very stressful. Most people wouldn't stress out over picking out paint colors for there new home, but when you have a spouse that can't visualize your plan it can make a person want to give up on trying. I want to use these colors in our master bedroom. All he can see is the pattern. 
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