Wednesday, October 30, 2013

Therapies for fibromyalgia pain

One of the latest alternative therapies for fibromyalgia is very old: tai chi. This is the ancient Chinese system of gentle movement that helps align your core energy, or "chi." The National Center for Complementary and Alternative Medicine (NCCAM) is funding a clinical trial of tai chi to see how it affects muscle-skeletal pain, fatigue, sleep quality, psychological distress, and overall health in people with fibromyalgia. NCCAM is also funding research on acupuncture, especially relating to fibromyalgia pain, and on biofeedback in treating fibromyalgia. 

Myths about Fibromyalgia

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Despite the fact that fibromyalgia has finally gained widespread acceptance as a medical illness, confusion abounds regarding this poorly understood condition. So it's time to put aside some of the biggest misconceptions about fibromyalgia.

MYTH: Your Fibro Symptoms Are All in Your Head
Truth: Fibromyalgia is a real medical condition, which includes specific medical criteria for diagnosis. And fibromyalgia researchers are learning more and more about it. In fact, we now know that the nervous systems of people with fibromyalgia process pain signals differently than people who don't have the condition.

MYTH: Only Lazy, Inactive People Get Fibromyalgia
Truth: Researchers actually suspect that many people who develop fibromyalgia are driven people, and that the stress of that drive may play a role in wearing away a person's defenses against fibro symptoms.

MYTH: There Are No Effective Fibro Treatments
Truth: Here's the good news. As more and more research is being done on fibromyalgia, we're learning more about it. And that's helping doctors pinpoint better, more effective fibro treatments. The catch is that what works for one person may not work for another, so you need to work closely with a doctor to refine and modify your fibromyalgia treatment.

Saturday, October 26, 2013

Having Fibromyalgia & defending my passion.


This is what I wanted to say to a woman that asked me why she wasn't getting Host Picks on Poshmark. I responded with my usual answer " SHARE SHARE SHARE" her response back was so stressfull that I started to write this back to her. Fortunately I re-read it & chose to be "MAGNANIMOUS" and say " Poshmark isn't for every one" but I still want to share what I was truly feeling like saying. I hope it isn't offensive to you & forgive me for any hurt feelings.❌❌⭕️⭕️✌️

" I may not have the verbage or the education that most people have. Poshmark is about love and sharing. For me its about what I can give not what I can get. I've already had my success, I retired at the age of 40. I'm a multi millionaire, and I do Poshmark because I want to give back. It's not relevant of how much time I spend sharing. I've been bedridden for almost 3 years. I finally got enough strength to find a new passion, regardless if I make money or not. I make money on my investment. Everything I have I own. I have no debt. I live way under my means. You being a business major, couldn't possibly understand my heart for Poshmark. This is a place for women who need an extra income and a purpose. From what you've said you have your purpose. Maybe Poshmark is not for you. It's not for everybody. Its a little like becoming a born again Christian. You become a follower of Christ because you have faith in a Creator that became a man & died on a cross so we can have a personal relationship with Him and have eternal life. If you haven't had an experienced with the Holy Spirit's love, its difficult to understand. Why else would a person  believe that we were created and placed on this earth to love other people. That is my purpose. I've been extremely blessed in my life. Yes I've had my struggles (fibromyalgia has kicked my butt). But in the end my Creator always gives more to me than I will ever be able to give to other people. That's why I choose to share other peoples closets and talk highly of Manish. He is a man that created a business that women with illnesses like myself can do without much effort. I use to make a lot of money at one time & worked my but off for the all mighry $$. Now that I'm retired, I get to choose how I spend my time. I choose spending my time helping other people. I'm in bed most the day anyway. As far as seeing you on Google+, I did ask people to do a practice run before Poshfest. No one did a practice with me so I didn't think anyone was interested. I do apologize. But that's all I can do is apologize. I appreciate the fact that the three things about you is that you don't tolerate bullshitters or tip toe around how you feel. I appreciate that you don't think that that's what I was doing to you. In the past when I've tried to defend myself because of my illness, most people don't understand it. Having fibromyalgia is a REAL DIAGNOSED CHRONIC ILLNESS. It can cause my brain not a function like a normal person, plus have memory loss. I had to take a lot of medication just to get to Poshfest, yes it was worth it. Even if I helped one person know that they're cared for, are accepted just the way they are, & that they're appreciated. What Manish has done for me by creating Poshmark is keeping me from killing myself. My pain consumes me every day. At one time I was on 16 different medications. When I had to rest and be in bed I started getting fat. I've always been a size 2 to 6. Now I'm a 12. Being in the beauty industry for over 20+ years, it was about how you look...Fashion....what's hot now...not how much college education you've had. It's been 20 years of my life being brainwashed into thinking if ur pretty, u can get what u want. If ur ugly & fat u better get an education. Poshmark has reprogrammed my brain to what's realy important. PoshLove it doesn't come from eBay, Copious, Amazon, or any retail store. Why have you interrogated me about "What has Manish & Poshmark given me for my time?" All I did was let U know how I share the Posh Parties & Co-host's closets way before the party even has a theme. Having a chronic illness, (fibromyalgia & CD) its nessary to keep my mind occupied so I don't think about the pain as much. If you haven't experienced a chronic illness then it would be difficult to understand." 
This is where I stopped & read my words....realizing it would just cause me more stress which makes my fibromyalgia worse. I've learned it's ok to feel angry when someone is attacking something you have a passion for. It's NOT OK to cause more stress by TRYING to defend your passion. 

Wednesday, October 16, 2013

Note to a friend

I wouldn't wish fibromyalgia on my worst enemy. What the Dr.'s will do is test u for every disease out there & when they don't find anything wrong, THEN they will test u for fibromyalgia. Here is what my symptoms are. It started when I injured my back in 2000. I never healed from it. I used to pop out of bed, now I can't get out of bed until live taken my morning pills & laid on my infrared heating pad for 30 min. & do my bed Yoga for 20 min. My body feels like I have the flu all the time everyday (going on 12 years now). One time I had the flu and didn't know it until my hubby said I was hot. I took my temp. 102 deg & had to go to Emergancy cuz it was after hrs. Now that I have sciatic on my right side, I ache from my toes to my pinky finger with no relief unless I'm sleeping or highly medicated. It feels like growing pains when I was a kid. A deep in the bone burning sensation, it's been 4 years now & my left side has compensated for so long now it's got a burning deep inside sensation. Everything that hurts from normal activity. I vacuumed my bedroom & Great room with a Kirby G5 auto drive & it put me in bed for the rest of the day with pounding pings that made me crawl in a fetal position. It wasn't always this way, it started off as flu like symptoms; fatigue, headache, body aches...then the sciatica came on like a bat to my body ( 20 yrs in the beauty business & bending over ppl waxing ) forced me into early retirement. I was bed ridden for 3 months, that's when I found Poshmark. About May of 2012, I tried to do eBay and almost sold a $250 Coach handbag for $10 bucks! Thankfully I was able to go in as my husband and buy it for $11. The meds for fibromyalgia are horrible! The side effects are memory loss, constipation, weigh gain, on & on & on. It's only by the grace of God I'm going to Poshfest. I started the blog so I could have a place to express my true pain without complaining on FB & Poshmark. I mention it in my meet the seller only to let ppl know that it's a real autoimmune disease. Women from around the USA have fibromyalgia PLUS other illnesses. It helps to know I'm not alone & gives me more of a reason to find a cure. The Dr.'s that actually believe it's a real diagnosis are saying there's no cure, that a person will only receive 50% relief EVER. It's like a death sentence without the peace of death. At least the other illnesses have that or can go into remission. Not to down play them, but only to say fibromyalgia NEVER gets a break of relief. I will find a cure! I feel like it's part of my destiny. The Blog is a starting place. I'm hoping that while I'm at Poshfest no one will be able to tell how much pain I'm in. I've learned different techniques of being social w/ a smile on my face with out being to fake. I'm constantly saying in my head "I can do all things through Christ that strengthens me" He really is my true healer, I'm learning that He didn't give this illness to me. Yes He has allowed it...for the big picture. I'm learning how to NOT burn the candles at both ends. How to NOT feel sorry for myself, but to forgive myself. How NOT to make "what I do, become who I am". That patience truly is a virtu, I now have the capacity to tolerate delay, & suffer without getting angry or upset. If u don't have insurance, & u think u might have fibromyalgia....take a hard look at your life. Are u eating to much whites; flower, sugar, milk, any food that is high in fat? Are u getting quality sleep? Do u burn the candle at both ends? Is your life balanced? Do u hold anger? Can u forgive? Do u exercise? Do u drink 1/2 your body weight in oz of water? ( ie. if u weighed 100lbs u would drink 50oz a day). Are you stressed? Over worked? Had any accidents? Memory loss? If u answer these Q's truthfully u will be able to make corrections & have a better life. I hope this helps u my friend. I may be only I my 40's but I have an old sole & learn quickly from my mistakes. Plus, I look at my family of 3 aunts & my mom to make sure I don't make there mistakes. Will I still make mistakes? Yup, but I wouldn't be where I am today without learning everyday. I know who I am. I know how to make corrections. I know how to have balance (even though I miss that one ALL the time UGGH) I've learned how to love myself without being selfish. I accept myself & others right where they are...even if I'm frustrated by them. My new mantra is "love 2 live-live 2 love" even if I don't feel like it. ❌❌⭕️⭕️✌️